Long Covid: Data Suggests People Struggle Without Support
New statistics suggest there is a ‘missing cohort’ of people struggling with long Covid but not receiving support, prompting health officials to seek help from the council and the voluntary sector.
The borough’s specialized service has so far carried out 95 evaluations in its clinic and around 40 in the community, with 300 referrals received to date.
But according to the latest data from City & Hackney’s Covid Rehab service, around 65% of patients are white Britons or another white ethnicity.
In 22% of the cases, the ethnicity is not known, while around 7% are recorded as’ Asian or British Asian – Indian ‘, the remainder being listed as’ Black or Black British – Caribbean’ and ‘ Mixed – any other ”.
According to the figures, no cases have been treated so far for people of ‘Black or black Briton – African’, ‘Black or black Briton – Any other’, ‘Mixed – Caribbean white and black’ or ‘Mixed – African white and black ”. ‘ethnicities.
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Workstream Director Charlotte Painter said: “We are very aware that we are missing a cohort of people who have not shown up and who are potentially struggling and in need.
“It’s quite a large number of people, so we need to balance that without overloading the service, so maybe we need to take a kind of step-wise approach. The other thing we need to do is more communication and engagement through community groups.
In a recent town hall meeting, Health Review Chairman Cllr Ben Hayhurst spoke about residents in his department who contracted Covid in the first wave and visited their doctor GP with symptoms of long Covid, but could not access help because the Painter system “was not in place or in place at this point, and they feel they have zero where to go ”.
Painter said the system was “fairly well aware” of people in this situation, with his team determined to have GPs proactively contact patients who either had Covid or suspected Covid.
In a joint presentation between Painter and Dr Fiona Kelly, head of Adult Therapies and Rehabilitation at Homerton, counselors to the Hackney Health Review Board were told that two different cohorts had emerged of people. living with a long Covid.
A group is made up of those, after hospitalization, who required a period of care in a hospital ward and who would then receive treatment in a follow-up clinic.
The second group is made up of people presenting symptoms to their GP who are less likely to have needed acute care and have recovered, before experiencing debilitating and long-term symptoms, with the average age of this group being about 44 years old.
Dr Kelly said: “It’s a very wide range of symptoms that people experience. The most common which is often a feature is persistent fatigue which is really debilitating, and shortness of breath.
“The impact is also far-reaching, affecting people who return to work, care for themselves and others, as well as their psychological well-being and the management of their relationships.
“This is of course a new condition. We continually learn and develop the evidence base and do so through collaboration. We participate in regional and national work aimed at developing clinical standards and building consensus around what might be appropriate outcome measures. “
She added: “There is a risk that people will try to do too much too soon and experience further relapses, so it is really important that this is a qualified and clinically led intervention to support the patients. patients. “
You can find the Homerton One Stop Shop for Covid Recovery and Rehabilitation Patient Information and Resources here, including fatigue management, physical activity and nutritional counseling.
You can find Homerton’s post-Covid information booklet here.
You can call Talk Changes on 020 7683 4278 or visit www.talkchanges.org.uk. If you need urgent help because you are worried about hurting yourself or someone else, call the City & Hackney 24-hour helpline on 0800 073 0006.